About this group

In January 2021, BAPM convened a Data and Informatics Steering Group in response to the increasing complexity surrounding neonatal data arising from varying quality measures and diagnostic definitions, and multiple electronic patient record systems.

The group aims to champion and support perinatal professionals with the use of neonatal data to improve neonatal care and services. 

The remit of the group includes:

  • Advocacy for the collection and use of accurate data to benefit patient care and neonatal services
  • Development of shared resources to support perinatal professionals to maximise the utility of data to benefit patient care
  • Promotion of a nationally standardised approach to quality measure definitions and interoperability of EPR systems, reducing the burden of data entry for clinical staff
  • Facilitation of collaborative engagement between stakeholders to streamline data collection, curation and analysis for common purposes

Key Priorities 2024-2027

1. Maintaining and improving current facilitation of use of neonatal data

  • Maximising completeness and accuracy
  • Improving data quality
  • Enabling NHS use of neonatal data
  • Achieving clinical improvement

2. Delivery of long term stability for neonatal data flow

  • Vendor neutral data hosting solution allowing NHS/ audits/ research/ other access to data

3. Collaboration with maternity data flows to facilitate better perinatal measurement

  • Supporting improved utility of, and use of, maternity data
  • Linkage between maternity and neonatal data
  • Facilitation of direct maternity data flow into neonatal data systems


  • Single point of data entry/ multiple uses of data
  • Proportionate, accountable, approach to data governance
  • Minimising barriers to data access – proportionate costings etc
  • Standardised data definitions and dataset
  • Accountable approach
  • FAIR - Findability, Accessibility, Inter-operability, Reproducibility
  • Equity and equality.

Group Members

  • Chair and Data Lead for BAPM - Sam Oddie
  • LNU Representative - Sanjeev Deshpande
  • Trainee Representative - T’ng Chang Kwok
  • Trainee Representative - Anoop Ramana
  • Neonatal Graduate - Juliette Lee
  • Network Representative - Louise Weaver- Lowe
  • QI Data User - Kirstin Webster
  • QI Data User - Caroline Nyawira
  • ANNP Representative - Francine Wootton
  • Nurse Representative - Rebecca Over
  • EPR Representative - Giles Kendall
  • Additional Member - Catherine Nash
  • Additional Member - Andrei Morgan

You can contact the any of the group members via the BAPM Office.

Contact Data Group

British Association of Perinatal Medicine (BAPM) is registered in England & Wales under charity number 1199712 at 5-11 Theobalds Road, London, WC1X 8SH.
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