Data FAQs: Neonatal data stakeholders

Stakeholder	Aims/remit	Data source	Population and coverage	Funding source	Main outputs
National Neonatal Audit Programme (NNAP)	Overarching quality improvement objectives to: reduce unit and network level variation through benchmarking, outlier identification and management, sharing best practice and quality improvement (QI) examples, and signposting to resources available in the wider neonatal care system nationally, to seek to reach agreed developmental standards for process measures where care currently falls below those standards report outcome measures and their variation between units and networks collaborate with other audits to improve neonatal care adapt to new and emerging quality improvement priorities.	2006 – 2019: NNRD 2020-2025: Clevermed	England, Wales, Scotland (2015 – 2019). Intention for Scotland to rejoin and Northern Ireland to join	Commissioned by Healthcare Quality Improvement Partnership (HQIP), delivered by the Royal College of Paediatrics and Child Health (RCPCH). Funded by England, Scottish, and Welsh governments.	Annual NNAP report ‘Near real-time’ reporting of quality measures Quarterly data quality reporting
Intensive Care Quality Improvement Programme (ICCQIP)	QI programme relating to infection in patients in intensive care units	UKHSA Second generation surveillance system	England	UKHSA	ICCQIP reporting
Neonatal Data Analysis Unit (NDAU)	Support audit, evaluations, benchmarking, quality improvement and clinical, epidemiological, health services and policy research to improve patient care and outcomes	NNRD (derived from Clevermed data)	England, Wales, Scotland	Grant income	Health services evaluation Research publications
Operational Delivery Networks (ODN)	Identify and monitor strategic aims, align service development to national and local priorities and ensure identification of future needs to maintain and improve patient access and equity of service delivery to the required standards	Predominantly Clevermed	13 neonatal networks	Specialised Commissioning	Network reports Dashboards
Neonatal Critical care Clinical Reference Group (CRG)	CRGs consist of clinicians, commissioners, public health experts, patient and public voice representatives and professional associations which offer specific knowledge and expertise to advise NHS England and NHS Improvement on the best ways that specialised services should be provided. Lead on the development of clinical commissioning policies, service specifications and quality standards. Provide clinical advice on innovation, horizon scanning, service reviews and guide work to reduce variation and deliver increased value. Ensure that any changes to the commissioning of specialised services focus on the needs of patients and the public with the support of their patient and public voice representatives.	Various	England	NHSE Specialised Commissioning	Commissioning products SSQD
Getting It Right First Time (GIRFT)	Support providers in delivering service improvements and efficiency improvements through identification of areas of unwarranted variation in clinical practice and/or divergence from the best evidence. Each workstream culminates in a report and a set of national recommendations aimed at improving the quality of care and also reducing expenditure on complications, litigation, procurement and unproven treatment. This work also supports the development of the Model Hospital which enables NHS hospital Trusts/Boards to compare areas of efficiency and productivity alongside their quality indicators and standards.	NHS Digital (many sources NHS data) Clevermed MBRRACE NNAP GIRFT Questionnaires	England	NHS England/Improvement	Individual Trust & Network datapacks National Reports: Combined RCPCH workforce snapshot Sept 2020; GIRFT National Neonatology Report; and GIRFT Neonatology Workforce Reports
National Child Mortality Database (NCMD)	Statutory reporting and recording of comprehensive data, standardised across a whole country (England), on the circumstances of children’s deaths. Aim: to reduce modifiable child (0-18 years) mortality Legal basis – Children Act.	Child Death Review partners and Child Death Overview Panels	England	HQIP on behalf of NHS England	Annual data return/report for England Thematic Reports 2 weekly real-time surveillance reports for NHS-England
Mother and Babies - Reducing risk through audits and confidential enquiries across the UK (MBRRACE- UK)	Provide robust data and evidence to support: 1. improving the quality of maternity and neonatal care to improve outcomes for mothers and babies and reduce maternal and perinatal mortality and morbidity; 2. reducing inequalities in maternal and perinatal outcomes related to social and ethnic disparities, and maternal age; 3. education, training and continuing professional development of clinical staff from those in training through to senior medical, midwifery and nursing staff.	Perinatal deaths data from all Trusts and Health Boards across the UK. Births and deaths data from ONS, NHS Digital (England and Wales), NRS (Scotland), NIMATS (NI)	England, Wales, Northern Ireland, Scotland, Jersey, Guernsey and Isle of Man	NHS England, Scottish, Welsh and Northern Ireland governments. Commissioned on behalf of the funders by HQIP	Perinatal mortality surveillance annual reports and interactive maps Perinatal confidential enquiries of perinatal deaths and severe perinatal/infant morbidity Trusts/Health Boards have access to their own data via the Real-time Data Monitoring Tool
Perinatal Mortality Review Tool (PMRT)	Tool to support systematic, robust, local review of all perinatal deaths. Note that PMRT is not a data collection tool as such, but the process inevitably ‘collects’ data	Reviews of perinatal deaths carried out in local Trusts/health Boards	England, Wales, Northern Ireland, Scotland, Jersey, Guernsey and Isle of Man	Department of Health and Social Care England, Scottish, Welsh and Northern Ireland governments. Commissioned by HQIP on behalf of the funders	National report with higher level findings.
National Maternity and Perinatal Audit (NMPA)	Produce accessible and relevant outputs to a variety of stakeholders, healthcare professionals, commissioners and service users on a number of key measures and identify unexpected variations between maternity services.	NNRD (previously) NHS Digital (Maternity Services Data Set) Hospital Episode Statistics	England, Scotland and Wales	Commissioned by the HQIP. Led by the Royal College of Obstetricians and Gynaecologists in partnership with the Royal College of Midwives, the Royal College of Paediatrics and Child Health and the London School of Hygiene and Tropical Medicine.	Quarterly reporting of clinical data Annual clinical report Periodic ‘sprint audits Research publications