ENHANCE is the first UK-wide study which aims to increase understanding about different ways in which end-of-life care is provided for babies, children and young people. Based at the University of York, it will generate robust evidence on the best ways to organise and provide end of life care. This research is vitally important because the current clinical guidance is based on low quality evidence.
Researchers are now beginning the third workstream of the study, which aims to assess whether baby and parent outcomes vary depending on the components of end-of-life care they received. They are asking clinical teams in neonatal units to collect more information on the choices that parents are offered if their baby is at risk of dying. If the baby dies, then researchers are asking a member of the clinical team or bereavement team to give the parent(s) information about this study.
To help with site set-up for this study, researchers are holding one-hour online meetings to discuss the study and the involvement of healthcare professionals, for potential local Principal Investigators and R&D Managers. There will be held:
- 2 March, 09:30
- 9 March, 14:30
- 15 March, 13:30
If you are the clinical lead of a neonatal unit and you are interested in being involved with the study, or would like to attend one of the meetings, please get in touch with the study team: [email protected]