A new research collaboration has been established to help influence future research into the most premature babies - babies born before 25 weeks of gestation.
The National Perinatal Epidemiology Unit Clinical Trials Unit and Murdoch Children’s Research Institute have set up a James Lind Alliance Priority Setting Partnership (JLA PSP) to survey a range of people for their ideas on research uncertainties relating to this group of babies.
Researchers want to hear about the most pressing questions that you feel need to be answered about:
- The treatment and care of the most premature babies, born before 25 weeks of gestation (i.e. around 4 months early), during their hospital admission.
- The mental health and wellbeing of parents/carers/families of the most premature of babies.
- Other relevant areas/aspects that could benefit from research.
The initial survey was launched mid-October 2022 and closes at the end of January 2023.
Researchers are particularly keen to hear from parents/carers or family members of the most premature babies, and from people with different lived experiences of being a premature baby themselves, as well as healthcare professionals who look after premature babies.
Once researchers have collected the research uncertainties, they will be sending out further surveys to prioritise these uncertainties in order to identify the top 10 research priorities for the most premature babies. These prioritised uncertainties will then help inform funding organisations and researchers where to focus their resources.