A team from the UK Renal Registry are undertaking a surveillance study to identify children who develop kidney failure (end-stage kidney disease) and for whom a decision is made in their best interests to manage their kidney condition conservatively.
Hosted by the British Paediatric Surveillance Unit and funded by Kidney Research UK, the study commenced in September 2020 and is running for two years. BAPM members are encouraged to report cases who meet the following three criteria:
- Have evidence of structural or functional kidney abnormalities which are expected to be long-term. The child (under 12-months) has developed kidney failure, defined as a persistent (at least 2 occasions) serum creatinine of >120 μmol/L.
- A decision has been made not to pursue long-term kidney replacement therapies (dialysis, transplantation) and to instead manage the kidney condition conservatively.
- Children who receive a brief period (<90 days) of dialysis before a decision is made may also be included.
For any study queries, please contact Lucy Plumb ([email protected]).
More details are available on the study website.